This project is supported by the health resources and services administration hrsa of the u. Talk with your physician about ways that you can enhance balance in your roles. Functional, psychosocial, and caregiver outcome data. The impact of an educational intervention in caregiving. Griffin and colleagues conducted the family and caregiver experience study faces with caregivers n 564 of service members who incurred a tbi. The ocbs and bcos were translated from english into arabic in accordance with guillemin et al. Pain assessment and management strategies for elderly. Started in 1995, this collection now contains 6767 interlinked topic pages divided into a tree of 31 specialty books and 732 chapters. Bakas caregiving outcome scale item means and percentages ratings of negative outcomes at 8 months after baseline item scores caregiver precedent is described by caregiving antecedent. Caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective wellbeing, and physical health as a result of providing. For this part, we are interested in how confident you are that you can keep up your own activities and also respond to caregiving situations. Psychometric testing with two convenience samples of family caregivers of stroke survivors ns 92, 104 was conducted using item analysis, cronbachs alpha, factor analysis, and hierarchical multiple regression.
Caregivers are often unprepared and overwhelmed with the responsibilities of providing care to stroke survivors, which can lead to negative physical and psychological effects purpose. The higher the score the more prepared the caregiver feels for caregiving. Nearly always please circle the response the best describes how you feel. The results in this study demonstrated that the zarit burden interview is a valid and reliable instrument for measuring the burden of caregivers of pwd in singapore. Functional independence measure, bakas caregiving outcomes scale, reintegration to normal living index across admission, discharge, and followup. Family caregivers of stroke survivors experience a variety of negative social, emotional, and healthrelated outcomes as a result of providing care objectives. Tamilyn bakas, dns, rn, faha, faanassociate professor. The aim of this study was to validate the greek translation of the revised bakas caregiving outcomes scale bcos with a sample of informal caregivers of people with advanced cancer receiving outpatient palliative radiotherapy. Burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire.
Using the bakas caregiving outcomes scale, which evaluates changes in the caregivers life as a result of providing care for the patient, 2231 71% reported no significant change, 431 12. Validity and reliability of the zarit burden interview in. Crosscultural adaptation of the caregiver reaction assessment for use in brazil with informal caregivers of the elderly examined by a committee of judges, for its semantic, idiomatic, experimental and conceptual equivalencies, in order to establish a preversion brazilian cra. Time and difficulty of tasks provided by family caregivers of stroke. In fact, this stress can build up to actually cause caregiver distressa situation where the caregiver may become more susceptible to other health risks such as high blood pressure, diabetes, and increased risk of stroke. The present study examined the reliability and validity of the bsfcs. A change for the worst in caregivers was associated with improvements in functioning between admission and discharge p caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective wellbeing, and physical health as a result of providing. Living index across admission, discharge, and followup. The responsibilities and challenges of caring for a loved one can place significant stress on the family caregiver. The bakas caregiving outcomes scale bcos is an instrument designed to measure life changes in family caregivers of persons with chronic illness. Issues such as quality of life are now widely used in clinical trials and in patient management for assessing morbidity and the impact of treatment. The purpose of this study was to develop and psychometrically test the diabetes caregiver activity and support scale dcass, a measure of how difficult or easy caregiver activity and supportive behaviors are for family caregivers of persons with type 2 diabetes t2dm.
These two were recommended because of validity and reliability. Scared brief assessment caregiver anxiety here is a list of sentences that describe how people feel. Family caregiver outcomes in heart failure europe pmc. Search for abbreviation meaning, word to abbreviate, or lists of abbreviations. Stroke is one of the leading causes of severe, longterm disability, 1 with a majority of stroke survivors requiring the assistance of a family caregiver. Therefore, a distinction between the use of the terms, caregiving and caregiver, in the extant literature is warranted. Evidence for stroke family caregiver and dyad interventions. Development and psychometric testing of the bakas caregiving. Comprehensive data from the ida project were the basis of the. Validation of the revised bakas caregiving outcomes scale in. Revised scale for caregiving selfefficacy steffen et al. The most popular abbreviation for bakas caregiving outcomes scale is. Development and psychometric testing of the bakas caregiving outcomes scale. Bakas caregiving outcomes scale west indian medical journal.
Psychometric testing of the developmental care scale for. Many selfreport instruments have been developed to measure the caregiver s burden, needs, and their qualityoflife. Background the burden experienced by family caregivers is the most important caregiverrelated. Further research using the proposed conceptual model and the hfcql scale is warranted.
The stroke survivors completed the barthel index and the geriatric depression scale. Life changes and burden were measured using the bakas caregiving outcome scale bcos and the oberst caregiving burden scale ocbs, respectively results. The 15item bakas caregiving outcomes scale bcos measures caregiver. Exploratory factor analysis provided evidence of construct validity as a unidimensional scale, as well as a multidimensional scale consisting of four subscales. The new hfcql scale showed potential as a quality outcome measure in hf caregivers, and might be used to screen hf caregivers for poor quality of life. Family caregivers are known to experience many negative outcomes as a result of providing care for a stroke survivor after discharge to the home setting bakas, 2009. Community stroke rehabilitation teams csrts provide a communitybased, interdisciplinary approach to stroke rehabilitation. Background the burden experienced by family caregivers is the most important caregiver related. Assessing the impact of caregiver outcomes on function and. Perception of life change was measured using the bakas caregiving outcomes scale bcos, which measures change in social functioning, subjective wellbeing, and somatic health. The bakas caregiving outcomes scale and a demographic sheet were administered to the caregivers. Caregivers sociodemographic characteristics, the oberst caregiving burden scale ocbs and the bakas caregiving outcome scale bcos. Carer impact the impact of a disease on a patient is an increasingly important outcome measure in medicine and healthcare.
Burden scale for family caregivers in 20 european languages. The scale is scored by calculating the mean of all items answered with a score range of 0 to 4. Bakas and burgener 2002 found that difficulty with carrying out caregiving tasks was a strong predictor of emotional distress and other negative health outcomes in the stroke caregiver. The original 10item bcos was improved by adding five items addressing. Time and difficulty of tasks provided by family caregivers. Caregiver burden considerably affects the lives of families providing care to people with advanced cancer. The bcos scores increased consistently over time, showing significant differences at 6 months compared with 2 weeks mean difference. Stroke caregiver outcomes from the telephone assessment and. The bcos was developed to measure changes in caregiving outcomes. To develop and psychometrically test the bakas caregiving outcomes scale bcos measuring changes in family caregiving outcomes in the stroke population. The patient health questionnaire depression scale phq9 measuring caregiver.
Depression severity was measured by the patient health questionnaire9 phq9. The bakas caregiving outcomes scale bcos was originally developed in 1994 to measure life changes in family caregivers of stroke survivors. An evaluation of the family informal caregiver stroke self. Subjective burden is a central variable describing the situation encountered by family caregivers. Responses are rated on a 5 point scale with scores ranging from 0 not at all prepared to 4 very well prepared. Anxiety and depression were selfreported by the caregiver as a physician diagnosis. Three instruments were used in this study to collect data pertained to this study. The 15item bakas caregiving outcomes scale bcos measures caregiver life changes specifically as a result of providing care. Ideas from aphasia caregiver and dementia caregiver groups page 5 of 6 reference list bakas, t. Dec 14, 2012 caregiver burden considerably affects the lives of families providing care to people with advanced cancer.
Functional independence measure, bakas caregiving outcomes scale, reintegration to normal. After each question, circle how often you feel that way. Psychometric testing of the revised 15item bakas caregiving. Bcos is an acronym for bakas caregiving outcomes scale. Stroke caregiver outcomes from the telephone assessment. Caregiver burden is low nine to twelve months after. Baseline 1 week prior to participation in ptc program, 1 week after completion of the ptc program, and 6. The 10item short version of the burden scale for family caregivers bsfcshortbsfcs was developed to provide an economical measure of this variable. Pdf validation of the revised bakas caregiving outcomes scale in. Caregiver burden was measured with the revised greek bakas caregiving outcomes scale, and psychological distress was screened with greek hospital anxiety and depression scales. The original 10item bcos was improved by adding five items addressing financial wellbeing, level of energy, role functioning, physical functioning, and general health.
Subscribing to this logic, caregiver and caregiving equate to the same, when in essence, the terms may represent two entirely different concepts. Stroke caregiver outcomes from the telephone assessment core. Providing homebased stroke rehabilitation in ontario, canada volume 41 issue 6 l. Family caregivers of stroke survivors experience a variety of negative social, emotional, and healthrelated outcomes as a result of providing care. Caregiver outcomes included the hospital anxiety and depression scale hads, 17 generic hrqol eq5d5l questionnaire, 18 family caregiver quality of life famqol, 19 caregiver burden questionnaire for heart failure cbqhf, 20 and caregivers contribution to selfcare of hf index ccschfi. Bakas caregiving outcome scale item means and percentages ratings of negative outcomes at 8 months after baseline item scores outcome measures include the bakas caregiving outcomes scale bcos and depression phq9. Outcome measures table interventions to support caregivers. Anxiety and depression associated with caregiver burden in. Request pdf psychometric testing of the revised 15item bakas caregiving outcomes scale family caregivers of stroke survivors. Issues such as quality of life are now widely used in clinical trials and in patient management for assessing morbidity and the impact of. Development and psychometric testing of the diabetes. To psychometrically test the revised 15item bakas caregiving outcomes scale bcos measuring life changes specifically resulting from providing care. This manuscript examines caregiver burden among a small sample of primary caregivers of stroke patients in jamaica.
Caregiver burden was measured by the oberst caregiving burden scale ocbs and the bakas caregiving outcomes scale bcos. To evaluate the impact of the family informal caregiver stroke selfmanagement ficss program on burden and life changes resulting from providing care among family caregivers of. Bcos is defined as bakas caregiving outcomes scale very rarely. Farran, dnsc, rn, faanprofessor and the nurses alumni association chair in health and the aging process. Validation of the revised bakas caregiving outcomes scale in greek caregivers of patients with advanced cancer receiving palliative radiotherapy. Telehealth powerful tools for caregivers effectiveness. Assessing change in response to participation in the powerful tools for caregivers ptc program. Validation of the revised bakas caregiving outcomes scale. Our objective was to assess the effectiveness of these teams with respect to client outcomes. Home care nurses rate a familys caregiving outcomes on three scales the frail elder outcome scale, the caregiver outcome scale, and the family outcome scale using a scoring range from 1 least positive outcome to 3 most positive outcome. The scale was originally developed to measure life changes in family caregivers of stroke survivors, but has also been used in family caregivers of those with heart failure and a variety of other. The bakas caregiving outcomes scale bcos is an instrument designed to. Short version of the burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire.
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